Prevalence of Severe Bleeding in COVID-19 Patients Treated With Higher Than Recommended Thromboprophylaxis Doses

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Prevalence of DVT or PE in Patients Infected With COVID-19 Admitted to Hospital

Mucopolysaccharidosis I (MPS I) Registry

The data collected by the MPS I Registry will provide information to better characterize the natural history and progression of MPS I as well as the clinical responses of patients receiving enzyme replacement therapy, such as Aldurazyme (Recombinant Human Alpha-L-Iduronidase), or other treatment modalities.

The objectives of the Registry …

Pompe Disease Registry

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Ventilator Strategies in ICU Patients With COVID-19 - a National-wide Retrospective Observational Study.

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This study will provide important data on the ventilation strategies used and its potential adverse events in unselected ICU patients with COVID-19 and thereby inform clinicians, patients, policy-makers, and future research in this area.

Use of PCR-Sars-CoV-2 in Children

This algorithm, in two parts, can be used, when symptoms are detected in children, to orient and guide :

International Collaborative Gaucher Group (ICGG) Gaucher Disease Registry & Pregnancy Sub-registry

Gaucher Pregnancy Sub-registry: The primary objective of this Sub-registry is to track pregnancy outcomes, including complications and infant growth, in all women with Gaucher disease during pregnancy, regardless of whether they receive disease-specific therapy.

Fabry Disease Registry & Pregnancy Sub-registry

No experimental intervention is involved; patients in the Registry undergo clinical assessments and receive care as determined by the patient's treating physician.