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Establishing Biomarkers and Clinical Endpoints in Myotonic Dystrophy Type 1 (END-DM1) Extension

Join our END-DM1 study to help research Myotonic Dystrophy Type 1.

Recruiting
18-70 years
All
Phase N/A
  • Simplified description (AI rewritten)
  • Technical description (Original)

Study on Myotonic Dystrophy Type 1 (DM1)

This study focuses on understanding how Myotonic Dystrophy Type 1 (DM1), a genetic disorder causing muscle weakness, affects people over time. DM1 can also lead to problems with thinking, heart rhythms, breathing, or eye issues. This study, lasting at least 4 years, aims to track these changes in over 1,000 adults. Researchers want to see how things like walking speed and muscle strength change and if these can be used to measure the disease's progress.

  • Time Commitment: The study will take a minimum of 4 years, with multiple visits.
  • Eligibility: Adults aged 18-70 with a clinical or genetic diagnosis of DM1, or related symptoms since birth.
  • Exclusions: If you have certain health conditions or plan to become pregnant, you may not be eligible.

If you or someone you know fits this description and is interested, this study could help us learn more about DM1.

Study details
    DM1
    Myotonic Dystrophy
    Myotonic Dystrophy 1
    Myotonic Dystrophy Type 1
    Myotonic Dystrophy Type-1
    Myotonic Dystrophy
    Type 1 (DM1)
    Myotonic Muscular Dystrophy

NCT07700225

Virginia Commonwealth University

22 July 2026

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