Fabry Disease Registry & Pregnancy Sub-registry
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- STATUS
- Recruiting
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- End date
- Jan 31, 2034
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- participants needed
- 9000
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- sponsor
- Genzyme, a Sanofi Company
Summary
- To enhance the understanding of the variability, progression, and natural history of Fabry disease, including heterozygous females with the disease;
- To assist the Fabry medical community with the development of recommendations for monitoring patients and reports on patient outcomes to help optimize patient care;
- To characterize and describe the Fabry population as a whole;
- To evaluate the long-term safety and effectiveness of Fabrazyme
Description
Details
| Condition | fabry disease |
|---|---|
| Age | 100 years and younger |
| Clinical Study Identifier | NCT00196742 |
| Sponsor | Genzyme, a Sanofi Company |
| Last Modified on | 5 August 2024 |
Eligibility
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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.
Learn moreIf you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.
Learn moreComplete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.
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