Rheumatology Patient Registry and Biorepository

  • STATUS
    Recruiting
  • End date
    Jun 1, 2040
  • participants needed
    5000
  • sponsor
    Yale University
Updated on 19 February 2024
rheumatoid arthritis
rheumatic diseases
rheumatism
lupus
arthritis
autoimmune disease
vasculitis
polymyositis
myositis
antiphospholipid syndrome
sjogren's syndrome
connective tissue disease
giant cell arteritis
adult onset still's disease
arteritis
dermatomyositis
mixed connective tissue disease
sarcoidosis
scleroderma
behcet's disease
ankylosing spondylitis
skin disease
polymyalgia rheumatica
skin conditions
psoriatic arthritis
spondylitis
behcet's syndrome
reactive arthritis
polymyalgia
undifferentiated connective tissue disease

Summary

To facilitate clinical, basic science, and translational research projects involving the study of rheumatic diseases.

Description

A rheumatology biorepository will be created to permit comparative analyses between the rheumatic diseases in order to increase the understanding of disease pathogenesis. Patients diagnosed with rheumatic diseases are invited to participate in this study. These rheumatic diseases include, but are not limited to: adult onset Still's disease, ankylosing spondylitis, psoriatic arthritis, reactive arthritis, antiphospholipid syndrome, systemic lupus erythematosus, Behcet's disease, dermatomyositis, polymyositis, giant cell arteritis and other vasculitides, Lyme's disease, mixed connective tissue disease, polymyalgia rheumatica, rheumatoid arthritis, sarcoidosis, systemic sclerosis (scleroderma), Sjogren's syndrome, and undifferentiated connective tissue disease. Healthy volunteers are also invited to participate in this study.

Details
Condition Dermatomyositis, Rheumatism, Ankylosing spondylitis, Ankylosing spondylitis, Psoriasis, Antiphospholipid Syndrome, Antiphospholipid Syndrome, Behcet's Syndrome, Adult Onset Still's Disease, CONNECTIVE TISSUE DISEASE, dermatomyositis (connective tissue disease), Sicca Syndrome, Reiter's syndrome, Reiter's syndrome, PSORIATIC ARTHRITIS, PSORIATIC ARTHRITIS, Lyme Disease, Lyme Disease, Giant Cell Arteritis, Rheumatoid Arthritis, Rheumatoid Arthritis, Scleroderma, Systemic sclerosis, Scleroderma, Anterior uveitis, Anterior uveitis, Polymyalgia Rheumatica, Myositis, Myositis, Dermatosis, SYSTEMIC LUPUS ERYTHEMATOSUS, SYSTEMIC LUPUS ERYTHEMATOSUS, Lyme Disease Vaccine, Musculoskeletal Disease, Lymphoproliferative Disorder, Mixed Connective Tissue Disease, Sarcoidosis, Sarcoidosis, Arthritis, Polymyositis, dermatomyositis (connective tissue disease)
Age 18years - 99years
Clinical Study IdentifierNCT04402086
SponsorYale University
Last Modified on19 February 2024

Eligibility

Yes No Not Sure

Inclusion Criteria

Age 18 years old
No chronic skin conditions
No diagnosis of a rheumatic autoimmune disease (e.g., lupus, rheumatoid arthritis)
Normal BMI

Exclusion Criteria

Unable to provide informed consent
Currently pregnant or nursing unless the study goal is to study pregnant or nursing woman
Allergies to lidocaine or epinephrine (skin biopsies)
A history of impaired wound healing (skin biopsies)
Clear my responses

How to participate?

Step 1 Connect with a study center
What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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