Equality in Caregiving

  • STATUS
    Recruiting
  • participants needed
    45
  • sponsor
    Emory University
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Updated on 19 February 2024
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dementia

Summary

The primary goal of this pilot clinical trial is to establish the readiness of an intervention addressing the unique challenges facing lesbian, gay, bisexual, and transgender (LGBT) informal caregivers of person living with dementia (PLWD), and geared toward achieving caregiver mastery in this high-risk population, for a larger efficacy trial.

Description

Over 15 million family caregivers provide more than $200 billion in unpaid care to a person living with dementia (PLWD). Informal caregiving for PLWD by lesbian, gay, bisexual, and transgender (LGBT) individuals continues to receive limited attention, and current research rarely examines how caregiving for PLWD affects the LGBT community.

The primary goal of this pilot clinical trial is to establish the readiness of an intervention addressing the unique challenges facing LGBT informal caregivers of PLWD, and geared toward achieving caregiver mastery in this high-risk population for a larger efficacy trial.

Details
Condition Dementia, Dementia, Alzheimer's Disease, Alzheimer's Disease, Caregiver Burnout
Age 18years - 100years
Treatment Focus Group, Savvy Caregiver Program, Modified LGBT Savvy Group program
Clinical Study IdentifierNCT04394260
SponsorEmory University
Last Modified on19 February 2024

Eligibility

 Yes No Not Sure

Inclusion Criteria

Self-identification as a LGBT adult (18 yrs. and over)
Provides informal care to a community dwelling family member or friend with dementia
Available to attend all SCP classes and one focus group and
Consent to blood draw

Exclusion Criteria

Residence in a skilled nursing facility
Significant neurological disease, stroke, TBI, or significant head trauma
Any significant systemic illness or unstable medical condition which could affect cognition, cause difficulty complying with the protocol or consenting for study procedures
History of alcohol substance abuse or dependence
Currently participating in a study with an intervention (i.e., social/behavioral, drug, or device)
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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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