Family Impact of Polyhandicap: a Mixed Methodological Approach
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- STATUS
- Recruiting
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- participants needed
- 260
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- sponsor
- Assistance Publique Hopitaux De Marseille
Summary
Polyhandicap (PLH) is a complex disability condition corresponding to a chronic affliction occurring in an immature brain, leading to the combination of profound mental retardation and serious motor deficit, resulting in an extreme restriction of autonomy and communication. In a preliminary work, we demonstrated that French families reporteda deterioration of the quality of life. This first study, based on a cross-sectional study and quantitative methods, did not allow to explore: 1) the dynamic aspect and the evolution over time of this experience, 2) the mechanisms underlying the difficulties encountered, the needs and expectations of families
Details
| Condition | Polyhandicap |
|---|---|
| Age | 8-35 years |
| Treatment | qualitative study |
| Clinical Study Identifier | NCT04492761 |
| Sponsor | Assistance Publique Hopitaux De Marseille |
| Last Modified on | 19 February 2024 |
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