Family Impact of Polyhandicap: a Mixed Methodological Approach
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- STATUS
- Recruiting
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- participants needed
- 260
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- sponsor
- Assistance Publique Hopitaux De Marseille
Summary
Polyhandicap (PLH) is a complex disability condition corresponding to a chronic affliction occurring in an immature brain, leading to the combination of profound mental retardation and serious motor deficit, resulting in an extreme restriction of autonomy and communication. In a preliminary work, we demonstrated that French families reporteda deterioration of the quality of life. This first study, based on a cross-sectional study and quantitative methods, did not allow to explore: 1) the dynamic aspect and the evolution over time of this experience, 2) the mechanisms underlying the difficulties encountered, the needs and expectations of families
Details
| Condition | Polyhandicap |
|---|---|
| Age | 8years - 35years |
| Treatment | qualitative study |
| Clinical Study Identifier | NCT04492761 |
| Sponsor | Assistance Publique Hopitaux De Marseille |
| Last Modified on | 19 February 2024 |
How to participate?
Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.
Learn moreIf you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.
Learn moreComplete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.
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